Honouring Incredible Women & Their Amazing Families🤍

Interview 1 – Alex & Jack (Duchenne Muscular Dystrophy)
Alex shares the heartbreaking journey of raising her son Jack, who was diagnosed with
Duchenne Muscular Dystrophy (DMD), a rare and progressive muscle-wasting condition with no
cure. Joining Jack was founded by Jack’s parents to raise awareness and funding for research
and treatments for boys living with Duchenne. The charity campaigns, fundraises and supports
clinical trials to help bring better care and future treatments to children affected by the condition.
🔗 https://www.instagram.com/joiningjack/
🔗 https://joiningjack.org/

Interview 2 – Poppy, Marlowe & Harper (Cerebral Palsy)
Poppy shares her story as a mum to twin daughters Marlowe and Harper, who both live with
Cerebral Palsy. During pregnancy, Poppy also experienced Stage 4 Twin-to-Twin Transfusion
Syndrome (TTTS), a serious and life-threatening condition that impacted the twins before they
were even born. The family are raising funds for SPACE Hertfordshire, a charity that has
supported Poppy and her daughters. One of our other mums, Layla, works at SPACE and kindly
invited Poppy to join this campaign to celebrate mums on Mothers Day.
🔗https://www.instagram.com/spacehertfordshire/
🔗https://spaceherts.org.uk/

Interview 3 – Corina & Daisy (Down Syndrome)
Corina opens up about raising her daughter Daisy, who has Down Syndrome and complex
medical needs. Daisy spent months in intensive care as a baby and now lives with multiple
health challenges. Corina is raising funds for Cosmic, a charity that supports babies and
children in intensive care at hospitals in London. Cosmic funds life-saving equipment, medical
research, specialist training and provides support for families going through incredibly difficult
times.
🔗 https://www.facebook.com/daisys21wishes/
🔗 https://cosmiccharity.org.uk/

Interview 4 – Layla, Amelia, Lily & Ella-Mai (Autism)
Layla speaks about life raising her daughters, one of which has been diagnosed with Autism.
She shares the challenges and the joys of supporting neurodivergent children and helping them
thrive. Layla works for SPACE Hertfordshire, a charity that supports thousands of families
across Hertfordshire by providing community support groups, workshops, activities and practical
resources for parents and children navigating neurodiversity - something which is very close to
her heart.
🔗https://www.instagram.com/spacehertfordshire/
🔗 https://spaceherts.org.uk/

Interview 5 – Emily & Leni (Sanfilippo Syndrome / Childhood Dementia)
Emily shares the devastating story of her daughter Leni, who was diagnosed with Sanfilippo
Syndrome (also known as childhood dementia) shortly before her second birthday. The
condition causes children to gradually lose the ability to walk, talk and function. Emily and her
family are fundraising to help access potential treatments and support Leni’s care as they fight
to give her the best possible future.
🔗@Saving_Leni
🔗 https://gofund.me/a86be2cf5

Interview 6 – Annalise & AJ (Alström Syndrome)
Annalise shares the story of her son AJ, who lives with the rare genetic condition Alström
Syndrome. After years of medical investigations, AJ finally received his diagnosis at five years
old. The family are raising funds for Alström Syndrome UK, which provides support, information
and advocacy for families living with this extremely rare condition, while also raising awareness
and promoting research into treatments and care.
🔗 https://www.facebook.com/AlstromsyndromeUK
🔗 https://www.alstrom.org.uk/ Receive SMS online on sms24.me

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