How Rare Disease Patients Are Rewriting The Rules Of Medicine
CNBC’s Becky Quick steps out from behind the anchor desk to share her family’s private battle with her daughter’s rare disease. Through her story and others like it, Quick reveals the stark reality of patients caught between groundbreaking scientific advances and the persistent gaps in funding, access, and support.Chapters:
00:00 Introduction
01:16 Chapter 1: Rare Disease Hits Home
05:14 Chapter 2: Early Detection
08:15 Chapter 3: Gene Editing
11:09 Chapter 4: Cost to Save a Life
14:15 Chapter 5: Parents as Agents of Change
Host: Becky Quick
Executive Producer: Kelly Lin
Senior Editorial Producer: Brad Quick
Supervising Producer: Katie Kramer
Editors: Candice Goldman, Rich Korn
Camera: David A. Grogan, Marco Mastrorilli, Tara McCurrie, Gerard Miller, Oscar Molina
Additional camera: Mark Aster, Leroy Jackson, Andy Zaremba
Audio: Everett Wong
Senior Motion Designer: Erin Dean
Digital Media Specialist: Rich Marko
Technical Manager: Justin Elmendorf
Production Support by: Leanne Miller
Additional Footage provided by: Jeffrey Allen, Adam Anderson, Biotechnology Innovation Organization, Charles River Laboratories, Cure Rare Disease, John Crowley, Jeremy T. Grant, Florida State University, n-Lorem Foundation, Devin Perfumo
Special Thanks To KC Sullivan, who saw the promise of CNBC Cures before Becky and Matt did. We are grateful for his support.
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